Life Time Update............
Jan. 7th, 2017 09:44 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
disneydream06So anyway, Friday I had a return visit with my Family Med doctor. Primary reason was the follow up on my work restrictions, but also the follow up of the MRI and Ortho visits.
He openly admitted to now knowing anything about Parsonage-Turner Syndrome other then what he and his shadow he had that day had read in the last 3 minutes.
He said the only real thing to do was wait for it to get better.
Really???
I bit my tongue, for the moment, about what I read that nerve or tendon transfers were a surgical fix.
He said he saw that the Ortho guy talked about an EMG test, an Electromyography. It uses needles and/or electrodes hooked up to electricity to test muscles. Anyway he ordered the test. I have that done next Thursday. He said it might be a little while before we could figure out an appointment to see the neurologist.
As for the work restrictions, he wasn't sure what to do about those. Now that we weren't worried about protecting a torn rotator cuff any more, he wasn't sure if the restrictions were needed. I told him one problem was, the Clinic has a policy that if you are on restrictions for 12 weeks or more, you can lose your position, not your job, but your position. I told him, push comes to shove I will go off restrictions because I don't want to lose my position. Of course you can always play the system and work for one pay period at full productivity and then go back on restrictions. UGH to the loops you have to jump through here.
In the end he kept me on the restrictions for two more weeks and then most likely I will have to go off them to keep my work position. I suppose it may depend on what the neurologist has to say.
So after leaving there with my EMG appointment, I went home and stayed up for awhile. Then after barely getting to bed, the phone rang and it was the Clinic wanting to arrange an appointment to see the neurologist. So I will be seeing him Friday morning. Fingers crossed tightly for some answers after that appointment.
Friday evening I looked up EMG to get an idea of what the test all involved and I found some information on the Mayo Clinic's own web pages.
I decided to look up Parsonage-Turner Syndrome and I was taken to this page, http://www.mayoclinic.org/diseases-conditions/brachial-plexus-injury/home/ovc-20127336
It doesn't use the name Parsonage-Turner Syndrome by name, but it's the brachial plexus injury that is the PTS problem. Any way I looked through this information and came across this under the Treatment page...
Surgery to repair brachial plexus nerves should generally occur within six to seven months after the injury. If nerve surgery occurs more than six to seven months after the injury, the muscles may not recover their function.
Now if I can stumble across this information, why can't my doctors?????
So I will wait now to see what the EMG shows and what the neurologist has to say, but then I will point this out if they keep saying, Just Wait. :o
He openly admitted to now knowing anything about Parsonage-Turner Syndrome other then what he and his shadow he had that day had read in the last 3 minutes.
He said the only real thing to do was wait for it to get better.
Really???
I bit my tongue, for the moment, about what I read that nerve or tendon transfers were a surgical fix.
He said he saw that the Ortho guy talked about an EMG test, an Electromyography. It uses needles and/or electrodes hooked up to electricity to test muscles. Anyway he ordered the test. I have that done next Thursday. He said it might be a little while before we could figure out an appointment to see the neurologist.
As for the work restrictions, he wasn't sure what to do about those. Now that we weren't worried about protecting a torn rotator cuff any more, he wasn't sure if the restrictions were needed. I told him one problem was, the Clinic has a policy that if you are on restrictions for 12 weeks or more, you can lose your position, not your job, but your position. I told him, push comes to shove I will go off restrictions because I don't want to lose my position. Of course you can always play the system and work for one pay period at full productivity and then go back on restrictions. UGH to the loops you have to jump through here.
In the end he kept me on the restrictions for two more weeks and then most likely I will have to go off them to keep my work position. I suppose it may depend on what the neurologist has to say.
So after leaving there with my EMG appointment, I went home and stayed up for awhile. Then after barely getting to bed, the phone rang and it was the Clinic wanting to arrange an appointment to see the neurologist. So I will be seeing him Friday morning. Fingers crossed tightly for some answers after that appointment.
Friday evening I looked up EMG to get an idea of what the test all involved and I found some information on the Mayo Clinic's own web pages.
I decided to look up Parsonage-Turner Syndrome and I was taken to this page, http://www.mayoclinic.org/diseases-conditions/brachial-plexus-injury/home/ovc-20127336
It doesn't use the name Parsonage-Turner Syndrome by name, but it's the brachial plexus injury that is the PTS problem. Any way I looked through this information and came across this under the Treatment page...
Surgery to repair brachial plexus nerves should generally occur within six to seven months after the injury. If nerve surgery occurs more than six to seven months after the injury, the muscles may not recover their function.
Now if I can stumble across this information, why can't my doctors?????
So I will wait now to see what the EMG shows and what the neurologist has to say, but then I will point this out if they keep saying, Just Wait. :o
![[identity profile]](https://www.dreamwidth.org/img/silk/identity/openid.png){kind=small}
no subject
Date: 2017-01-08 05:11 am (UTC)The neurologist will stab these long needles into your muscles and then run electricity through the needles into your muscles and nerves. Its a freaky feeling and at times hurts like hell!!
The after pain that you feel hurts crazy bad. Mine hurt for a couple days after the test. When she stuck the needles into the palms of my hands, that hurt the worst.
I hope they get you figured out Jon...its no fun not knowing!! I think thats the hardest part. Once you know and have some solid answers and have a "fix it" plan...its always better.
Many Hugs
no subject
Date: 2017-01-08 07:48 am (UTC)I pray to God they find a reason and an fix. Seriously, whenever I have gone to the doctor with a problem, they do a butt load of tests and then tell me to live with it. ARGH.....
no subject
Date: 2017-01-08 07:30 am (UTC)The EMG is what I just got done for my Carpal Tunnel! What they do is they set up electrodes into muscles (for me my hands) and then send a little shock, medium, and bigger one. The second part they stick a needle in you and then turn on the sound and listen to your muscles move. It is actually rather cool. All in all the test was just a bit painful with the needle prick at the thumb and some of the shocks. Afterwards it left me a bit sore but all of this is all minor so don't worry!
I HOPE you get some answers soon!
no subject
Date: 2017-01-08 07:50 am (UTC)Finally an EMG story that doesn't fall under the Horror Story listing. :p
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Date: 2017-01-08 08:06 am (UTC)better safe than sorry, right?
you better rest as much as you can now and see what this brings you.
Perhaps you and I should go on a holiday for a few months and lay by a pool and do nothing. We could chat and keep one another glued to the chair hahaha
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Date: 2017-01-08 08:30 am (UTC)Do we get to have books and tv with our lounge chairs? :p
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Date: 2017-01-08 09:33 am (UTC)Learn more about LiveJournal Ratings in FAQ (https://www.dreamwidth.org/support/faqbrowse?faqid=303).
no subject
Date: 2017-01-08 11:33 am (UTC)no subject
Date: 2017-01-08 11:36 am (UTC)But I plan to copy off the page about not waiting too long for surgery and if they poo poo and tell me to wait I am going to shove it in their face. :o
no subject
Date: 2017-01-08 11:42 am (UTC)I find it awful that you can be at risk of losing your position through health reasons :(
no subject
Date: 2017-01-08 12:16 pm (UTC)A few years back I went in for a problem, and the woman had the nerve to ask me, Have you ever thought about getting a different job?
Seriously, I work for you for how many years, my body taking a beating, and your solution is to get me off the payroll?
ARGH.....................
no subject
Date: 2017-01-08 01:18 pm (UTC)admit nothing!
sending some juju!
no subject
Date: 2017-01-08 01:52 pm (UTC)Thank you so much.
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Date: 2017-01-08 02:01 pm (UTC)no subject
Date: 2017-01-08 02:56 pm (UTC)(no subject)
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Date: 2017-01-08 02:01 pm (UTC)no subject
Date: 2017-01-08 04:26 pm (UTC)no subject
Date: 2017-01-08 04:32 pm (UTC)I'm glad he was honest, but I really wish he had spent more then 3 minutes studying my case. :(
no subject
Date: 2017-01-08 04:58 pm (UTC)And MDs do not want us to google things! I guess they never do either :-o
Sending you good thoughts Jon!
no subject
Date: 2017-01-09 01:10 am (UTC)Nah, they really don't care about their employees. With the populations of Rochester, they always have somebody coming in the employment door. Plush they would be cheaper then me at 35 years. UGH..........
Who cares that most of the new ones are worthless. UGH...
no subject
Date: 2017-01-08 05:33 pm (UTC)I never tell people about a bad experience with regards to health before they are to have the same experience. I sympathise afterwards! If you have to have that test I hope it's not as bad as you fear.
no subject
Date: 2017-01-09 01:12 am (UTC)Thursday at my therapy session, he cracked my neck, which I had never had done before. That was worrisome. :o I can tell you, after having it done, I would never allow a non professional touch me to do that. :o :o :o
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Date: 2017-01-08 06:25 pm (UTC)no subject
Date: 2017-01-09 01:13 am (UTC)no subject
Date: 2017-01-08 10:23 pm (UTC)no subject
Date: 2017-01-09 01:19 am (UTC)I will definitely be speaking up if the neurologist tries to tell me all we can do is wait. :o I will be making a copy of that page to take along with me.
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Date: 2017-01-09 04:01 am (UTC)Big hugs and tons of support for the best possible outcome!
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Date: 2017-01-09 08:05 am (UTC)I plan to take a print out of that page along with me to the neurologist. If he starts talking about "just waiting", I will pull it out.
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Date: 2017-01-09 05:15 am (UTC)<3
XOX
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Date: 2017-01-09 08:06 am (UTC)Thank you so much. :)